Accelerating breakthroughs in neuroinflammatory disease.
“Our country is facing an unprecedented mental health crisis. The crisis isn’t just affecting adults, it’s devastating young people, and people from every background are impacted.”
U.S. Department of Health and Human Services
Press Release, May 5, 2023
The Brain Inflammation Collaborative’s mission is to revolutionize the diagnosis and treatment of neuroinflammatory illness through coordinated research efforts as well as through advocacy, awareness, and education. We aim to ensure that brain inflammation impacting mental health is properly diagnosed and treated.
We believe that many mental health symptoms often relate unknowingly to neuroinflammation. Proper diagnosis and treatment of such neuroinflammation can, and often does, lead to symptom improvement. Unfortunately, the connection between neuroinflammation and mental health is often hidden in plain sight, creating years of pain for patients, families, and clinicians.
We are developing The Unhide™ Project, and consider it our highest priority for 2023, because of its potential to bring breakthroughs related to the diagnosis and treatment of neuroinflammation on mental health. It is an online and ongoing clinical research study that allows patients, clinicians, and researchers to look for patterns and triggers in mental and physical health that we feel are driven by inflammation. The simple to use longitudinal data collection and biobank platform easily tracks patient stories, symptoms and life events with coordinating bio-samples all in one place. By participating in the Unhide™ Project, patients, clinicians and researchers will join a larger collaborative effort to help learn more about the much understudied area of brain inflammation.
Grant Funding & Research Coordination
We are coordinating and supporting research in a way that has never been done before. Through grant funding and the initiation of new research, we aim to advance a better understanding of neuroinflammation and to improve the diagnosis and treatment of mental health symptoms triggered by brain inflammation. We look to remove the barriers to research that often include protocol writing, IRB approval, data collection, data analysis, and publication writing – along with the fees that can be prohibitive.
“The more scientists we have studying these complex, neuroinflammatory disorders, or brain inflammatory disorders, the more tools we’ll have to diagnose and detect and to treat.”
Dr. Jenny Frankovich,
Director of Immune Behavioral Health Program Stanford University
Empowering With Collaboration
The Brain Inflammation Collaborative hopes to inspire the connections needed to make strides in understanding how brain inflammation affects our overall community. The need for patients, clinicians, and researchers to come together to learn from one another’s experiences to fuel these necessary advancements is essential to successfully uncovering the connection between brain inflammation and mental health.
We bring people together through educational outreach, conferences, seminars, webinars and innovative research projects and tools. We partner with researchers, leading expert advisors, as well as patient advocacy organizations to support us as we work to accelerate the process of uncovering the solutions needed for better diagnosis, treatment and prevention of brain inflammation.
Interested in learning more about the Brain Inflammation Collaborative?
Contact us to learn more about our research or get involved as a patient, researcher, clinician, or partner.