Long COVID Research Updates and Hispanic Community Impact
This Brain Inflammation Collaborative webinar featured Dr. Hector Bonilla discussing research perspectives on Long COVID and Kelsey Aguirre presenting the Spanish-language version of our patient platform, unhide (www.unhidenow.org). Dr. Bonilla provided an overview of Long COVID, explaining its global impact, pathobiological mechanisms, including viral persistence and immune dysregulation. He detailed the clinical spectrum from acute […]
Living Within The Energy Envelope: Research Updates & Interventions for People with ME/CFS
This Brain Inflammation Collaborative webinar featured Dr. Leonard Jason, a renowned ME-CFS researcher and patient, presenting on pacing as an intervention for managing post-exertional malaise (PEM). Dr. Jason shared his pioneering research from the 1990s on the energy envelope theory. He presented multiple studies showing the effectiveness of pacing interventions, including case studies, as well […]
Drug Repurposing in PANS: Improving Access to Innovative Treatment Options
This webinar focused on drug repurposing in PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) and the importance of collecting patient data through the Brain Inflammation Collaborative platform, unhideⓇ. https://youtu.be/K79ntgFMpCU Our Featured Speakers Dr. Jenny Frankovich from Stanford University presented research on the involvement of the basal ganglia, thalamus, and amygdala in PANS patients, along with evidence of blood-brain […]
Insights into Mood and Mind in Infection-Associated Chronic Conditions
This webinar will explore mood and behavior across multiple infection-associated chronic conditions. The Brain Inflammation Collaborative has developed a survey on our online health platform, the unhide Platform, that uniquely compares symptoms commonly reported by patients with illnesses such as PANS, Long COVID, ME/CFS, and/or Chronic Lyme disease. This is significant because mood symptoms in […]
Access to Care in PANS: Families’ Journeys to IVIG
Intravenous immunoglobulin (IVIG) therapy can be life-saving for those with PANS but health insurance denials are common and access to care can be extremely difficult. https://www.youtube.com/watch?v=KLLHcWlJ4Jg Learn more about: What PANS is and why IVIG is used Why access to IVIG is difficult for many families A study sponsored by BIC to investigate PANS families’ […]
Untangling Brain Fog with Neuroscientist Mara Kuvaldina, Ph.D.
Join us as we explore the science behind brain fog, a common yet poorly defined symptom that includes difficulty with thinking, memory, concentration, and more. Brain fog impacts many people from all walks of life, and is especially common among individuals living with chronic or post-infectious illnesses such as autoimmune diseases, Long COVID, ME/CFS, and […]