This webinar focused on drug repurposing in PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) and the importance of collecting patient data through the Brain Inflammation Collaborative platform, unhideⓇ.
Our Featured Speakers
Dr. Jenny Frankovich from Stanford University presented research on the involvement of the basal ganglia, thalamus, and amygdala in PANS patients, along with evidence of blood-brain barrier disruption during flares.
Breanne Failor, BIC’s Director of Strategic Partnerships, demonstrated how to use the Unhide platform to track symptoms and treatments, sharing her family’s experience using the platform to document her child’s response to various medications.
Dr. Denise Calaprice explained the PMQ (PANS/PANDAS Medications Questionnaire) survey, which collects data on immunologic medications and their effectiveness in treating PANS symptoms. The presenters discussed the challenges of diagnosing and treating PANS, including strategies to convince clinicians that symptoms such as joint pain are serious, and emphasized the need for more research to develop effective treatments and conduct clinical trials.
