Bridging Gaps in Research

Through a coordinated research effort involving patients, clinicians and researchers, the Brain Inflammation Collaborative strives to uncover connections between brain inflammation and mental and physical health and make advances in the diagnosis, treatment and prevention of neuroinflammatory illness.

Uncover hidden connections between inflammation and mental health with patient-reported outcomes that leverage wearables, and validated assessments on the Unhide™ Platform for groundbreaking research insights.

The Unhide Project is an ongoing online clinical study that assembles patient-donated data to help clinicians and researchers accelerate breakthroughs surrounding brain inflammation and mental health.

Join the Movement

The relationship between brain inflammation and mental health is vastly understudied and misunderstood. The Brain Inflammation Collaborative is leading the charge to change that. Discover all the different ways you can support our mission to find long-overdue answers and solutions for patients.

PRIVACY POLICY

Privacy Policy Terms
Brain Inflammation Collaborative (“BIC,” “us”, “we”, or “our”) operates the http://braininflammation.org/ Privacy Policy Terms Brain Inflammation Collaborative (“BIC,” “us”, “we”, or “our”) operates the http://braininflammation.org/ website (hereinafter referred to as the “Service”). This webpage informs you of our policies regarding the collection, use, and disclosure of personal data when you use our Service and the choices you have associated with that data. We use your data to provide and improve the Service. By using the Service, you agree to the collection and use of information in accordance with this policy. Unless otherwise defined in this Privacy Policy,
the terms used in this Privacy Policy have the same meanings as in our Terms and Conditions, accessible from http://braininflammation.org

Data Confidentiality
We will take all reasonable efforts to hold your personal information in strict confidence. This means we use your information only for its intended business purpose. We do not sell or trade your information to other organizations or individuals. This statement is not intended to reflect on any data privacy or cybersecurity practices of BIC

Your Information
If you choose to send us email, we may retain the contents of your email message, our reply and your email address as part of our ongoing customer service efforts. We reserve the right to contact you after you have contacted us and may send future email and/or surveys to you about Brain Inflammation Collaborative. You may notify us via email if you wish to discontinue electronic communication.

Record Keeping
We keep your personal information as accurate, complete, and up to date as is required to fulfill the purpose(s) for which you provided us with your personal information. Upon written request we will remove your personal information from our databases, except where legislation or regulation requires our retention of it (for example, charitable giving history tied to income tax receipts.) You may request a copy of your information, request to delete your information, or request to remove yourself from our databases by communicating with us via the contact information listed at the very end of this policy.

 

Definitions
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  • Personal Data Personal Data means data about a living individual who can be identified from those data (or from those and other information either in our possession or likely to come into our possession).
  • Usage Data

Usage Data is data collected automatically either generated by the use of the Service or from the Service infrastructure itself (for example, the duration of a page visit).

  • Cookies Cookies are small files stored on your device (computer or mobile device).

 

Information Collection and Use
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We collect several different types of information for various purposes to provide and improve our Service to you.

 

Personal Data
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While using our Service, we may ask you to provide us with certain information that can be used to contact or identify you (“Personal Data”). This may include, but is not limited to:

  • Email address
  • First name and last name
  • Phone number
  • Address, State, Province, ZIP/Postal code, City
  • Cookies and Usage Data

 

Usage Data
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We may also collect information on how the Service is accessed and used (“Usage Data”). This Usage Data may include information such as your computer’s Internet Protocol address (e.g. IP address), browser type, browser version, the pages of our Service that you visit, the time and date of your visit, the time spent on those pages, unique device identifiers and other diagnostic data.

 

Tracking and Cookies Data
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We use cookies and similar tracking technologies to track the activity on our Service and we hold certain information. Cookies are files with a small amount of data which may include an anonymous unique identifier. Cookies are sent to your browser from a website and stored on your device. Other tracking technologies are also used such as beacons, tags and scripts to collect and track information and to improve and analyze our Service. You can instruct your browser to refuse all cookies or to indicate when a cookie is being sent. However, if you do not accept cookies, you may not be able to use some portions of our Service. Examples of Cookies we use:

  • Session Cookies. We use Session Cookies to operate our Service.
  • Preference Cookies. We use Preference Cookies to remember your preferences

and various settings.

  • Security Cookies. We use Security Cookies for security purposes.

 

Use of Data
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Brain Inflammation Collaborative uses the collected data for various purposes:

  • To provide and maintain the Service
  • To notify you about changes to our Service
  • To allow you to participate in interactive features of our Service when you choose to do so
  • To provide customer care and support
  • To provide analysis or valuable information so that we can improve the service
  • To monitor the usage of the Service
  • To detect, prevent and address technical issues

 

Transfer of Data
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Your information, including Personal Data, may be transferred to, and maintained on, computers located outside of your state, province, country or other governmental jurisdiction where the data protection laws may differ from those from your jurisdiction. If you are located outside the United States and choose to provide information to us, please note that we transfer the data, including Personal Data, to the United States and process it there. Your consent to this Privacy Policy followed by your submission of such information represents your agreement to the transfer of that information. Brain Inflammation Collaborative will take all steps reasonably necessary to ensure that your data is treated securely and in accordance with this Privacy Policy and no
transfer of your Personal Data will take place to an organization or a country unless there are adequate controls in place, including the security of your data and other personal information.

 

Disclosure of Data
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The Brain Inflammation Collaborative shall provide you with the recipients or categories of recipients of your personal data, if any.

 

Legal Requirements
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Brain Inflammation Collaborative may disclose your Personal Data in the good faith belief that such action is necessary to:

  • To comply with a legal obligation
  • To protect and defend the rights or property of Brain Inflammation Collaborative
  • To prevent or investigate possible wrongdoing in connection with the Service
  • To protect the personal safety of users of the Service or the public
  • To protect against legal liability

 

Security of Data
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While data security is important to everyone, remember that no method of transmission over the Internet or method of electronic storage is 100% secure. While we strive to use commercially acceptable means to protect your Personal Data, we cannot guarantee its absolute security. Interactions with the Brain Inflammation Collaborative and/or our website are done at your own risk.  

 

Analytics
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We do use a third-party Service Providers to monitor and analyze the use of our Service.

  • Google Analytics

Google Analytics a web analytics service. You can visit their Privacy Policy page here: https://policies.google.com/privacy?hl=en&gl=ZZ

 

Links to Other Sites
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Our Service may contain links to other sites that are not operated by us. If you click a third party link, you will be directed to that third party’s site. We strongly advise you to review the Privacy Policy of every site you visit. We have no control over and assume no responsibility for the content, privacy policies or practices of any third party sites or services.The use of any data by Google or any third-party Service Provider is governed by their Privacy Policy and Brain Inflammation Collaborative is not responsible in any way for their use of any data or interactions you may have with those Service Providers once you leave the Brain Inflammation Collaborative website.

 

Changes to This Privacy Policy
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We may update our Privacy Policy from time to time. We will notify you of any changes by posting the new Privacy Policy on this page. We will let you know via email and/or a prominent notice on our Service, prior to the change becoming effective and update the “effective date” at the top of this Privacy Policy. You are advised to review this Privacy Policy periodically for any changes. Changes to this Privacy Policy are effective when they are posted on this page. Continued use of the Brain Inflammation Collaborative website after any change to the Privacy Policy, whether or not you review those changes, subjects all future use to the updated Privacy Policy. You specifically consent to the data collection, storage, and use practices of the updated Privacy
Policy if you continue to use the Brain Inflammation Collaborative website.

 

Contact Us
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If you have any questions about this Privacy Policy, please contact us:

You can mail a check (payable to Brain Inflammation Collaborative, Inc.) with your donation any time to the following address:

Brain Inflammation Collaborative, Inc.
925 Genesee St #180440
Delafield, WI 53018

https://braininflammation.org/wp-content/uploads/2023/06/Unhide_whitepaper_V4.pdf