Bridging Gaps in Research

Through a coordinated research effort involving patients, clinicians and researchers, the Brain Inflammation Collaborative strives to uncover connections between brain inflammation and mental and physical health and make advances in the diagnosis, treatment and prevention of neuroinflammatory illness.

Uncover hidden connections between inflammation and mental health with patient-reported outcomes that leverage wearables, and validated assessments on the Unhide™ Platform for groundbreaking research insights.

The Unhide Project is an ongoing online clinical study that assembles patient-donated data to help clinicians and researchers accelerate breakthroughs surrounding brain inflammation and mental health.

Join the Movement

The relationship between brain inflammation and mental health is vastly understudied and misunderstood. The Brain Inflammation Collaborative is leading the charge to change that. Discover all the different ways you can support our mission to find long-overdue answers and solutions for patients.

Patient

Stories

Humanizing Mental Health Discussions

Inspiring stories from people impacted by neuroinflammatory illnesses

Emilia’s Story

Hear more about Emilia and her daughter as they navigate the uncertainty of finding knowledgeable doctors when faced with sudden onset neuropsychiatric symptoms following multiple infections.
IMG_1609 Alpen Animation

Hear more about Emilia and her daughter as they navigate the uncertainty of finding knowledgeable doctors when faced with sudden onset neuropsychiatric symptoms following multiple infections.

Rachel’s Story

Rachel explains in moving detail how neuroinflammation affected her self image, spurred obsessive behaviors and led to social isolation.
bic_storie-rachel

“I couldn’t control my actions or my thoughts, or anything I was doing. I didn’t know what was happening to me.” That’s what brain inflammation felt like to Rachel. She explains in moving detail how neuroinflammation affected her self image, spurred obsessive behaviors, and led to social isolation. 

Hear more about her neuroinflammation experience and her recovery journey to get back to feeling “close to baseline.” 

Cristin’s Story

Learn more about Cristin and her son’s neuroinflammation journey as well as their hopes for PANDAS diagnosis and treatment.
bic_storie-christin

Cristin MacDonald, Ph.D., was in the car with her son when he started experiencing intense tics. 
“We didn’t know what to do and assumed the worst,” says Cristin. 

Thankfully, Cristin had heard about neuroinflammation from a mother whose sons had experienced similar symptoms. This allowed her to better advocate for her son and get him the treatment he needed, even when a neurologist she visited denied the existence of PANDAS. 

Information is vital. Learn more about Cristin and her son’s neuroinflammation journey as well as their hopes for PANDAS diagnosis and treatment.

Katelyn’s Story

Hear more about Katelyn’s recovery journey and her hope for other children living with neuroinflammation.
bic_storie-katerlyn

When Katelyn was in 7th grade, everything changed overnight. Out of the blue, she started to isolate herself and experience obsessive thoughts. She stopped going to dance and wanting to be around people. Thankfully, her mother understood the signs of neuroinflammation, and Katelyn underwent intravenous immunoglobulin treatment to boost her immune system. 

Hear more about her recovery journey and her hope for other children living with brain inflammation.

You can mail a check (payable to Brain Inflammation Collaborative, Inc.) with your donation any time to the following address:

Brain Inflammation Collaborative, Inc.
925 Genesee St #180440
Delafield, WI 53018

https://braininflammation.org/wp-content/uploads/2023/06/Unhide_whitepaper_V4.pdf