Strength in Numbers
Connecting Communities. Accelerating Discovery.
For too long, patients and families affected by related complex chronic conditions linked by neuroinflammation, immune dysfunction, and overlapping biology have existed in separate diagnostic silos. While each community has made important advances, the complexity of brain-body illness demands a more connected approach.
The Brain Inflammation Collaborative brings together advocacy organizations, research groups, clinicians, and patient communities to create a shared ecosystem for discovery.
Together, we are building one of the largest cross-condition datasets focused on brain inflammation, immune dysfunction, and whole-person health.
This is more than a collection of organizations. It is a collaborative effort to transform invisible illness into actionable research, improved care, and better outcomes for patients and families.
Our Partners
Each organization contributes unique expertise, lived experience, and community insight that strengthens our collective understanding of neuroinflammatory illness.
12th Man Technologies
ASPIRE
Association for Pelvic Organ Prolapse Support
Autoimmune Registry
Bay Area Lyme Foundation
CareEvolution
Center for Lyme Action
Claimable
Columbia University
Connective Tissue Coalition
Dysautonomia Support Network
Ehlers Danlos Society
ElevateRARE
Fibromyalgia National Leaders
Global Lyme Alliance
GPACT
Infection-Associated Chronic Conditions Initiative (IACCI)
Long Covid Families
Miles for Migraine
Moleculera Biosciences
National Youth PANDAS/PANS Alliance
Northwest PANS/PANDAS Network
Open Medicine Foundation (OMF)
PANDAS Network
PANDAS Physicians Network
Patients Rising
Solve M.E.
Solving MS
Standing Up to POTS
Stanford University
Super T Mast Cell Foundation
The Look. Foundation
The Zebra Club
Vassar College
Why Collaboration Matters
The Power of Collective Data
Most research studies focus on a single diagnosis. But patients often experience overlapping symptoms, shared biological pathways, and common barriers to care.
By partnering across conditions, we can identify patterns that might otherwise remain hidden.
Through the Collaborative Network, de-identified participant data contributes to a growing body of research spanning dozens of conditions and symptom presentations. This cross-condition approach helps researchers uncover meaningful insights that can accelerate understanding, improve patient care, and guide future studies.
When communities work together, every participant's experience becomes more valuable
Become a Partner
We believe meaningful research should be accessible to communities of every size.
Whether you represent a patient advocacy organization, nonprofit, research institution, clinician network, or community group, we welcome opportunities to collaborate.
Together, we can build the evidence base that patients and families deserve.